XCenter: Rare Diseases LIVE Session & Bundle

When: Nov 06, 2025 | 4pm-5:30pm (PT)
Where: Online via Zoom (Register Here)
Cost: FREE! Also available for 5.0 BCPA CEs
The XCENTER Series – Rare Diseases is a multi-part series focused on the real-world challenges and opportunities in rare disease care. Through a combination of lived experience, expert insight, and actionable guidance, the series offers a deeper look at the systems, stories, and strategies that shape the rare disease landscape.
You can attend the kickoff LIVE panel on November 6th, 2024 from 4-5:30 PM PST, or watch it on-demand after the event. All other modules/sessions will be available on November 7th on-demand in our virtual classroom.

This XCenter is FREE to attend for the general public. It is also available for 5.0 BCPA CE for $100 (HealthAdvocateX Professional members) and $125 (non-members).

Please reach out to us at info@HealthAdvocateX.org if you have any questions.

About The Live Panel Speakers –

Nate Milam II 

Founder & CEO, Stripes of Solidarity | Rare Disease Advocate

Organization: Stripes of Solidarity (SOS)

Nathanael (Nate) Milam II (he/him) is a passionate rare disease advocate, storyteller, and changemaker dedicated to advancing health equity and representation for historically marginalized communities. Misdiagnosed with Crohn’s disease at age seven and later correctly diagnosed with Hemophagocytic Lymphohistiocytosis (HLH), Nate endured sepsis, multiple rounds of chemotherapy, and a lifesaving bone marrow transplant. He has since transformed his lived experience into a platform for systemic change.

Nate is the Founder and CEO of Stripes of Solidarity (SOS), an intersectional advocacy platform that amplifies underrepresented voices through storytelling, education, and action. Through SOS, he leads campaigns and initiatives such as the Rare & Real podcast,which fosters open dialogue around rare disease, queerness, and authentic patient experiences.

His leadership extends nationally as an Ambassador and Patient Advisory Board Co-Chair for the Histiocytosis Association, and as a member of the Rare Disease Diversity Coalition, where he works to dismantle systemic barriers in research, care, and policy. With resilience, creativity, and policy insight, Nate is redefining advocacy and building communities where every patient’s story matters.

Kaitlin Patton, Clinical Psychologist 

Evolvinn Therapy and Consulting

Clinical Psychologist & Clinical Director

Over the past decade, Dr. Patton has enjoyed collaborating with patients across the life span and she has a particular interest in working with individuals who are dealing with chronic health conditions. Her approach is centered around Cognitive and Behavioral Therapy (CBT) and Acceptance and Commitment Therapy (ACT) while drawing on her extensive experience in a wide range of evidence-based practices, including solution-focused therapy and motivational interviewing.

Dr. Patton received her Bachelor of Science degree in Psychology from Biola University and earned her Master’s degree in Psychological Science and Doctorate degree in Clinical Psychology from Seattle Pacific University. She completed a predoctoral internship at Southwest Consortium, a partnership of the U.S. Department of Veterans Affairs, the University of New Mexico, and the Indian Health Service, and her postdoctoral fellowship at the Veterans

Affairs Hospital in Albuquerque, New Mexico. She has had the privilege of working with individuals in embedded behavioral health, residential, inpatient, and outpatient settings, including her own practice, and via telehealth sessions for the past six years.

As Evolvinn’s Clinical Director, Dr. Patton applies her skill in and passion for sizing up individuals’ complex challenges and crafting innovative, practical, empowering solutions. Dr. Patton is licensed in Virginia, California and Washington State and holds a telehealth license in Florida and Vermont.

 

Victoria Killian, BCPA, PCM, CDME

Independent Patient Advocate

Victoria Killian is a Board Certified Patient Advocate (BCPA) and rare disease advocate who transformed her own long diagnostic journey into a mission to help others. Living with ankylosing spondylitis, gastroparesis, narcolepsy, bronchiolitis, primary immunodeficiency, long COVID, and a rare elastin gene mutation, she understands the barriers patients face in a complex healthcare system. She serves on national and state advocacy committees, is a board member of G-PACT, and co-leads the Gastroparesis Support Group. Her work centers on health equity, lowering costs, and improving outcomes for patients with chronic illness and rare disease.

NO ONE SHOULD HAVE TO NAVIGATE HEALTHCARE ALONE

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